Annual Report 2013

Special Events

An Evening with Charles W. Collier: The Ups and Downs of Living with Alzheimer's Disease

Charles W. Collier is a retired senior philanthropic adviser at Harvard University and a volunteer for Cure Alzheimer’s Fund. Collier was diagnosed in 2008 with Alzheimer’s disease; his illness has slowed his speech, but not his thinking. In 2013, Charlie, along with his partner Susan Stover, described the ups and downs of living with Alzheimer’s disease in three separate public forums before audiences who had a rare opportunity to hear directly from a person with the disease and ask personal questions.

Boynton Beach Golf Tournament

On Feb. 26 at Indian Spring Country Club in Boynton Beach, Fla., the Women’s Golf League came together for a friendly round of golf and to raise money to fight Alzheimer’s disease. Each year the women hold a fundraising tournament and pick a charity to benefit from entry fees. This year they chose Cure Alzheimer’s Fund. “While none of us has Alzheimer’s, it is one of those universal causes that we could all rally around,” explains Ellen Cohen, one of the coordinators of the event.

Whole Genome Sequencing Project

During this webinar, David Shenk led a discussion with Rudy Tanzi, Ph.D., about the Whole Genome Sequencing project (WGS). Shenk and Tanzi covered the origins of Alzheimer’s genetics, the beginnings of WGS, the project’s expected impact on Alzheimer’s disease and the challenges going forward.

 

Alzheimer's Benefit Concert

In March of 2013, a group of students at Case Western Reserve University in Cleveland organized a campuswide alternative rock concert to raise money for Cure Alzheimer’s Fund. The band, Alzhernative Sounds, had pledged to do an annual event to benefit different charities.

Boston Marathon

On April 15, 2013, The Boston Marathon experienced two explosions that shattered the celebration that symbolizes springtime, life and freedom in that city. Three runners had stepped forward to run on our behalf and raise $5,000 each for Cure Alzheimer’s Fund. First-time marathon runner Kristen Adrien and her fiancé Travis Songer, who both work in the Biology Department at Boston College, joined our team in February. Meanwhile, Ann Bulson—who ran for Cure Alzheimer’s Fund last year—says this year “a close friend of mine lost her mother in January after a lengthy battle with Alzheimer’s.

Mountain Lake Golf Tournament

For the last few years Mountain Lake, a private club and community in Lake Wales, Fla., has held a yearly fundraising tournament to raise money to fight breast cancer. But this year club members decided to support a different cause, since one of their own has Alzheimer’s disease.

On April 28, 2013, a total of 44 golfers participated in a “better ball” tournament to raise money for Alzheimer’s research. Other club members donated to the cause as well. Before the event, the club distributed Cure Alzheimer’s Fund pamphlets to help inform people about the organization and the cause.

Second Graders Rally for a Cause

You don’t have to be a grown-up to realize what a difference giving back can make.

Running for a Reason

Kim Chan made every step count in the fight against Alzheimer’s disease this past May when she ran her first half-marathon—the OC in Orange County, Calif.—raising $3,100 for the cause. At each mile marker throughout the race, What are you running for? was posted.

Branchburg 5K Race and 1 Mile Fun Run/Walk

When high school junior Mike Napoli learned his friend’s mother had been diagnosed with early-onset Alzheimer’s disease at age 50, he wanted to do something to help. “Since my friend Riley’s mom, Marcia Stanford, is an avid runner and fitness instructor, I felt that a running event would be the best way to support her and her family,” says Napoli.

7th Annual Hay Harbor Tennis Tournament

Diana Fiske has organized a round robin tennis tournament at Fishers Island's Hay Harbor Club every year since 2007. The tournament raises money for Cure Alzheimer's Fund. In 2013, 44 players ranging in age from 20 to 84 participated.

Dick Hollander Open

Founded in 2013 by Jake and Josh Akman in honor of their grandfather, Dr. Richard Hollander, The Dick Hollander Open™ is a charity golf tournament that raises money for Alzheimer’s research.

At the event, Jake and Josh Akman both spoke about the disease and how it has affected their grandfather. They also created an Honor Green where they printed and displayed personal messages and pictures of participants’ loved ones who have been affected by Alzheimer’s around the putting green. 

Alzheimer's Research: Our Public-Private Partnership

Cure Alzheimer’s Fund and the National Institute of Mental Health (NIMH) are collaborating on a strategic initiative to accelerate the development of drugs and therapies for Alzheimer’s and related dementias—a significant unmet medical need. Viewers learned more about this topic during a live-streamed webinar with presenters Rudy Tanzi, Ph.D., chairman of Cure Alzheimer’s Fund Research Consortium, and Tim Armour, president and CEO of Cure Alzheimer’s Fund, along with moderator David Shenk.

David K. Johnson Foundation

Goal
Raised $20000
Updated: Dec. 4, 2013

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In 1994, David K. Johnson was diagnosed with Alzheimer’s disease at age 59; he died 10 years later. His wife and primary caregiver, Susan, passed away from a heart attack in 1999, just five years into David’s struggle with the disease. The responsibility then fell on their children—Gregg, Bruce and Laurel—to care for their father.

“We were fortunate to find wonderful care for our dad at Peter Sanborn Place—a non-profit residence and home care provider in our hometown of Reading, Mass.,” says Gregg Johnson. 

Greg Wellman

Goal $2500
Raised
Updated: Feb. 4, 2014

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On Sept. 14, 2013, Greg Wellman Jr., 34, of Kingsport, Tenn., swam 440 pool lengths to help find a cure for Alzheimer’s disease.

Nelson Everts

Goal
Raised $250
Updated: Dec. 4, 2013

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Nelson Everts, 12, chose to support Cure Alzheimer's Fund through a school project called "Citizenship in Action".

2013 Fall Symposium: Taking Control of Alzheimer's Through Research: The Road Map to Therapies

Watch the recorded video of 2013's Symposium here!

Note: This livestream recording begins with an introductory video, which was shown at the Symposium. To skip directly to the speakers, please advance the video to the 6-minute mark.

Maggie Campbell

Goal
Raised
Updated: Feb. 5, 2014

Donate online

Last year, bookbinder and letterpress printer Maggie Campbell used her talents to create limited-edition handmade calendars to support Cure Alzheimer’s Fund. This year, Maggie has created another stunning collection, made using dried Queen Anne’s Lace from her home in Brooklyn, N.Y.

Stephanie Hansen

Goal
Raised $5000
Updated: Apr. 18, 2014

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Stephanie Hansen of Austin, Texas first came up with the idea for Bravelets™ in 2011, when she found out her mother had breast cancer. Today, Bravelets has donated more than $470,000 to charities across the country.

Stephanie Moody

Goal
Raised $4500
Updated: Feb. 5, 2014

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Stephanie Moody rallied her friends at her annual Halloween party in Boxford, Mass., to help raise funds and awareness for Alzheimer's disease.

Kelly Hulfachor

Goal
Raised $400
Updated: Feb. 6, 2014

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Last fall, students in Kelly’s health class were asked to research a charity they believe “helps the greater good” and write a persuasive essay about it. Since Kelly’s grandma currently suffers from Alzheimer’s disease, Kelly chose to write about Cure Alzheimer’s Fund.

McDonald Family

Goal
Raised $20520
Updated: Feb. 4, 2014

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The McDonalds knew they wanted to do something to help fight Alzheimer’s, but they weren’t exactly sure what. When Christie saw an advertisement announcing that “Family Feud” was coming to Indianapolis for tryouts, she had found that something.

Alvaro Barbera

Goal
Raised
Updated: Feb. 6, 2014

Donate online

Alvaro Barbera, 28, is traveling across the globe to raise awareness of Alzheimer's disease with his project "Memories of the World".